Information for Patients and Carers

Your medical and personal information

Cornwall Hospice Care is responsible for the security of all the information it holds and uses. It takes seriously the need for confidentiality, the safe-guarding of personal information and the vitally important aspect of trust in a professional caring relationship.

Sharing for care

We also recognise the importance of sharing medical information about people in our care with the other health and social care professionals involved in their care. The information you give us may be recorded on both computer and paper records; and with your permission we may share that information for the purposes of your direct care with, for example:

  •  General Practitioners
  •  Community Nursing and Integrated Care Teams
  •  Colleagues at NHS Hospitals
  •  Cornwall Council
  •  Mental Health Services
  •  Hospice Volunteers (information to volunteers is on a strict ‘needs to know basis’ in order to ensure your safety and theirs.

Confidentiality

All members of staff employed by these agencies are bound by legislation and by the common law duty of confidentiality, which means that information that you provide to us must be held in confidence and not shared with anyone else unless:

  • They are legally obliged to disclose the information to another organisation or person.
  • You provide consent to share the information to anyone else.
  • Protocols are in place permitting partners to share information about you to support any intervention or service provided for you.

Consent

You may withdraw your consent to sharing your information at any time but this may affect the care or services available to you. Please tell us if you would prefer us not to share your information.

Complaints

Should you wish to make a complaint regarding the use of your information please speak to a member of staff, or directly to the Information Commissioner’s Office – https://ico.org.uk/global/contact-us/

Anonymous use of your information

Your medical information may also be used to support clinical audit, education or other work aimed to monitor the quality of care provided. However all personal identifiers are removed to ensure confidentially and anonymity.

Other information we keep

We also keep the contact details of bereaved family members so that we can invite them for counselling when someone has died; again, please tell us if you would like to opt out of this further support and contact.

Copies of your information

We are happy to give you copies of all written communications to GPs or others. Please tell us if you would like this. Under the Data Protection Act (1998) you have the right to request a copy of your information. Please speak to a member of staff if you would like to do this.

Information security

Your personal data will be held in secure conditions within the European Economic Area in line with the Hospice’s ‘Health Record Retention Schedule’.

Any concerns?

Cornwall Hospice Care is committed to data protection and we have safeguards in place to ensure your information is properly looked after in line with current legislation, NHS codes of practice and professional codes of conduct. If you have any concerns regarding the use of your medical or personal information or for any further information please speak to a member of the clinical team.

Additional information

Should you require additional information regarding how your information is collected, used, shared, stored or processed please contact the:

Cornwall Hospice Care Information Governance Officer on: 01726 66868 Option 7